Newly Diagnosed? Here’s the Top 5 Questions to Ask

By the Endometriosis Alliance

Getting a Diagnosis Is a Big First Step

Hearing “you have endometriosis” can bring a rush of emotions — relief, confusion, and a thousand new questions.
Whether you suspected it for years or just started noticing symptoms, getting diagnosed is just the beginning of taking control of your care.

Here are the top 5 questions you should ask your doctor after a new endometriosis diagnosis:

1. How extensive is my endometriosis?

Understanding the location and severity of your disease is key.
Ask your doctor:

• Where have lesions been found?
• Are any other organs involved (bowel, bladder, diaphragm)?
• Was it diagnosed visually during surgery (laparoscopy) or through imaging?

Knowing the full picture helps you make better treatment choices.

2. What treatment options are available for me?

Endometriosis isn’t one-size-fits-all — neither is its treatment.
Discuss all options, which may include:

• Pain management (like NSAIDs)
• Hormonal therapy (birth control, progestins, GnRH medications)
• Surgical options (excision vs. ablation surgery)

Ask which treatment aligns best with your symptoms, goals, and lifestyle.

3. Should I see an endometriosis specialist?

Not every doctor who treats endometriosis is a true specialist.
Ask if your doctor recommends referring you to a specialist trained in excision surgery, especially if your symptoms are severe, widespread, or impacting your daily life.

Finding an experienced surgeon can make a major difference in outcomes.

4. How might endometriosis affect my fertility?

Endometriosis can impact fertility — but it doesn’t mean you won’t be able to get pregnant.
It’s important to ask:

• Does my current diagnosis affect my fertility?
• Should I consider fertility preservation options?
• What steps should I take now if I plan to have children later?

Even if you’re not thinking about pregnancy now, it’s helpful to plan ahead.

5. What can I do to manage symptoms day-to-day?

Endometriosis management isn’t just about medical treatment — it’s also about caring for your whole body and mind.
Ask for advice on:

• Nutrition and lifestyle changes
• Physical therapy for pelvic pain
• Mental health support resources
• Support groups or community programs

Small daily changes can make a real difference in your quality of life.

Final Thoughts: You Deserve Answers 💛

A diagnosis can feel overwhelming, but it also gives you power: the power to ask questions, make informed decisions, and build a care plan that works for you.

You are not alone — and you deserve compassionate, expert care every step of the way.