About the Endometriosis Alliance
Changing the way endometriosis is understood, diagnosed, treated, and supported — worldwide.
The Endometriosis Alliance is a global, patient-driven organization committed to improving care, raising awareness, and building community for anyone affected by endometriosis, adenomyosis, infertility, and related gynecologic conditions.
We're here to shift the system — and to support the people living through it every day.
Our Purpose
Endometriosis is a whole-body disease, and yet too often, care is fragmented, delayed, or dismissive. Diagnosis takes years. Access to skilled surgery is limited. And the voices of patients — especially those most marginalized — are still being ignored.
We exist to change that.
The Endometriosis Alliance is built around the idea that care should be collaborative, education should be clear, and everyone deserves to be seen, heard, and supported.
We don't just raise awareness. We take action.
What We Do
Educate
We break down the science. We spotlight the stories. We equip patients and providers with the tools they need to make informed decisions.
Support
From symptom-specific support groups to mental health resources and surgical guidance, we help people find their place — and their power — in the endo journey.
Connect
Through advocacy, storytelling, and community-driven initiatives, we're bringing together patients, providers, researchers, and partners around a shared mission.
Elevate
We recognize the voices changing care from the inside out — through our Changemaker Awards, contributor platforms, and global collaboration efforts.
Who We Are
We are patients, providers, advocates, educators, researchers, and organizers. We are people living with endometriosis. We are people who love people with endometriosis. We are those who refuse to let this disease go unseen any longer.
Together, we are building a future where endometriosis is treated not as an afterthought — but as a serious, systemic health issue that deserves comprehensive, compassionate care.
Our Vision
A world where:
- • Endometriosis is diagnosed early
- • Surgery is accessible and expertly performed
- • Patients are believed, not brushed aside
- • Providers are informed and connected
- • Research is fully funded
- • No one navigates this alone
This isn't just about awareness. This is about accountability, action, and collective healing.
Join Us
Whether you're newly diagnosed, a seasoned advocate, a provider looking to connect, or an organization ready to partner — there's a place for you here.
Let's change the story — together.
Get Involved